Why Many Autistic People Prefer to Be Called Autistic Instead of "On the Spectrum" or "Disordered”
Language shapes how we understand ourselves and others. In the autism community, there’s growing support for identity-first language—using “autistic” instead of “person with autism” or “on the spectrum.” But why do so many autistic individuals prefer this way of describing themselves, and what does the research say?
What Is Identity-First Language?
Identity-first language puts the identity before the person, for example, “autistic person.” This approach recognizes autism as an integral part of who someone is, not just a diagnosis or condition.
Why Do Autistic People Prefer Identity-First Language?
1. Autism Is An Inseparable Part of Them
Many autistic people see autism as a core aspect of themselves, fundamentally shaping how they experience the world, think, and interact. Describing someone as autistic acknowledges autism as part of their identity, not something separate or negative.
2. Promotes Acceptance and Pride
For many, identity-first language is empowering. It reflects pride in being autistic and challenges the idea that autism is something to be ashamed of or hidden. The neuroaffirming movement encourages celebrating differences, not just tolerating them (Kapp et al., 2019).
3. Rejects the Medical Model
“Person with autism” can feel clinical, as if autism is a disease or a problem to be fixed. Autistic self-advocates often prefer language that reflects the social model of disability, which focuses on acceptance and changing society, not changing the person.
4. “On the Spectrum” Can Be Vague or Minimizing
While “on the spectrum” is common, many autistic people feel it’s too vague or distancing. It can make autism sound like a passing phase or a minor trait, rather than a meaningful part of identity (Bottema-Beutel et al., 2021).
What Does Research Say About Language Preferences?
A large UK survey found that autistic adults overwhelmingly preferred “autistic” over person-first language. In fact, only 18% of autistic adults preferred “person with autism,” while most chose “autistic person” or “autistic individual” (Kenny et al., 2016). The survey also found that professionals and parents were more likely to use person-first language, but autistic people themselves favored identity-first terms.
Why Is This Important for Allies, Parents, and Professionals?
Using the language preferred by autistic people shows respect and supports self-advocacy. It helps build trust and creates a more inclusive environment. If you’re unsure which language to use, ask the individual—but know that “autistic” is often the choice among self-advocates. At Grey Matter, we are unapologetically neuroaffirming and use identity-first language.
How Can You Support Autistic People Through Language?
Use “autistic” when referring to someone who prefers identity-first language.
Avoid language that implies autism is a disease or something to be fixed.
Listen to autistic voices and self-advocates about their preferences.
Recognize that language can empower, validate, and foster acceptance.
Conclusion
The words we use matter. For many, “autistic” is not just a label—it’s an identity, a source of pride, and a call for acceptance. By respecting language preferences, we can help create a world where autistic people feel seen, valued, and understood.
Want to learn more about autism support and assessment? Contact Grey Matter Psych Assessment for resources and evaluations in Los Angeles, California. Virtual assessments available for residents of California.
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